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Getting Back Into The Swing of Things

thedaintypeach

It’s been quite a while since my last post. I’ve been focusing still on my health 100% and getting better. And…I am proud to report that I am doing fantastic!

I still have a lot of work to do, but things are really going great. I have tried all foods except dairy and gluten. That’s right. All foods and no problems. I have also gained 6 lbs. I was waffling for the past few weeks, randomly weighing a different amount each day. I’ve stabilized though for the past 5 days in a row.

I saw a performance recently of of the Left Coast Ensemble. Jerry Simas—the assistant professor of clarinet at the University of Oregon—flew in for the performance. It was wonderful.

The crowd was who you’d usually expect—generally older folks. It was a great concert, they served wine, and then I spoke to Jerry for just a moment afterwards. He is such a nice guy. We’ve only spoken a few times—and briefly at that—but he actually remembered who I was. After the concert I realized it’s time to start playing clarinet again.

I didn’t want to stop playing clarinet when I did a few months back, but, I really wanted to start “fresh” and have no distractions from focusing on my health. I have seen other musical performances since I’ve been in San Francisco. I’ve even been to see the San Francisco Symphony on more than one occasion. While the other performances I’ve seen made me want to start playing again…I just wasn’t ready.

I wrote up a letter telling my neighbors that I play the clarinet, and will be practicing at home. My number one concern really is to not annoy anyone.  I delivered the notes and so far there have been no complaints. Everyone I’ve talked to actually seems very supportive. I feel like things are really, truly beginning to be back on track.

A breakthrough: the real cause and cure of MCS

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So much has been happening these last few weeks, I’m not even sure where to start. Let’s begin on October 13th, at my second appointment with my new doctor.

My doctor was incredibly accommodating about the air quality in the office. At my first appointment, I became sick for days because of toxic pollution caused by personal care products, the carpets, paint, and cleaners that permeated the building. My doctor brought in a special air purifier which really made things tolerable. We went over some test results, and my doctor talked for about an hour and a half. He is incredibly intelligent and I really appreciate that he explains everything in great detail, talking to me as if I’m a med student.

The phrase that changed my life forever

My doctor was explaining his understanding of multiple chemical sensitivity.  During his very thorough description of how body processes work and are affected by MCS, he mentioned the phrase “fight or flight.” At this point you must be thinking, “ok. I’ve heard of the fight or flight response…nothing new here.” While this phrase is definitely common knowledge, it was his mentioning of it that lead me on to much bigger and greater things. My doctor said that during the fight or flight response the body equates the danger of chemicals and food to that of a saber toothed tiger. The part of the brain that controls the fight or flight response is unable to recognize and distinguish between the severities of any kind of threat, and so, sees all perceived threats as life-endangering.  This was a very brief portion of our conversation, and at the time I didn’t give it much thought.

I was researching MCS on the internet—a favorite pastime—when I came across the fight or flight response again. Since my doctor had mentioned it, I decided to click on the blurb I was now seeing. This new information lead me to the website planetthrive.com, where I was directed to Annie Hopper’s Dynamic Neural Retraining System. I was completely blown away by what I was reading on Annie’s website. It claimed that MCS is treatable, and many people go on to live perfectly normal, healthy lives. I watched every testimonial on the Dynamic Neural Retraining System I could find. Per her reading recommendation I downloaded the book, The Brain That Changes Itself by Dr. Norman Doidge. I was on an information binge like I’d never known.

The cause of MCS

Ok so, before I get too ahead of myself, let me explain a bit. The reason that people have MCS is because of an impairment in the limbic system in the brain. An occurrence of a toxic brain injury—such as being exposed to high levels of toxic chemicals from working in a new building—cause the brain to relate chemicals with pain, injury, and symptoms. Every time you are exposed to a substance your brain has been trained to believe is harmful and dangerous, it reinforces the incorrect association that this substance causes pain and symptoms, even if it is a totally inert substance, or too small a quantity to cause a toxic brain injury. Every time your body responds in this way, the neural pathways in the brain become stronger, causing even greater pain, symptoms, and suffering. Once your brain learns this pathway, it wants to continue traveling there.

I can’t recommend enough The Brain That Changes Itself. The book really explains brain plasticity (the ability of the brain to rewire and change itself) in great depth, with tons of scientific research and testing, as well as personal stories to draw you in. I started reading the book and couldn’t put it down. I couldn’t stop telling people about it either! It is hands down the best book I have ever read. It explains how it’s possible for stoke victims who are paralyzed or can’t speak to retrain their brains to gain back lost functions. Or how someone who is born with only one brain hemisphere can learn to use both sides of their body. The brain is plastic, and there are no set sections of the brain that necessarily do any one function. It can all be rewired. Reading Dr Doidge’s book made me incredibly excited and optimistic about recovering from my MCS.

I ordered Annie’s DNRSystem, but I had to wait about two weeks to get it. The company had some initial trouble with shipping, which has since been rectified. I received the DVD system in the mail on a Thursday night, and over the next four days I was an active participant in the all-day DVD seminars.

The DVD instructions explicitly state to not start the program when anything stressful is happening in your life, such as moving. Of course I wanted to follow all instructions….but I wouldn’t have been able to consider moving right away if this system didn’t offer at least some improvement. I decided to ignore the warning and started the program anyways.

My recovery so far

Let me share with you the changes I have experienced in only a few short weeks.

  • I feel alive
  • I’m not dead-tired all the time
  • I’m happy, upbeat, and talkative
  • I don’t get irrationally irritated at everything
  • I can go into public, on the bus, on an airplane, into stores
  • I can walk next to a laundromat, nail salon, and people who are smoking
  • I can go rock climbing
  • I can put on lotion
  • I can wash the dishes with a perfumed Dawn dish soap
  • My sense of smell is normalizing. No more hypervigilant-super-human-strength-nose
  • I can wear deodorant and mascara
  • I can eat hot dogs, honey, corn, potatoes, chocolate, hazelnuts, agave syrup, vinegar, spices, rice, preservatives and the added vitamins and minerals in orange juice and milk substitutes
  • I can drink juice and eat as much fruit as I want
  • I ate in a restaurant
  • I ate coconut bliss ice cream
  • I ate garlic olives
  • I ate food items that weren’t organic
  • I can be in our smelly temporary apartment in downtown San Francisco
  • I washed my clothes in a shared washing machine
  • My husband can wear deodorant and be in the house with me, right next to me, with me smelling his armpit

I started noticing improvements within two days of starting the program. That’s how plastic the brain is. And this system is for more than just MCS. It helps people with chronic fatigue syndrome, fibromyalgia, anxiety, obsessive compulsive disorder, chronic pain. I’m sure way more. People who have crazy food allergies—who go into anaphylactic shock—have been completely cured by this system. I honestly think that is where I was headed. In the past, my throat had been constricting more and more whenever I left the house.

Although I am doing fantastic, I still have a ways to go before I am completely healed. The program is really based on the individual, and can take some time. I am committed to practicing until I am completely well. The company recommends you practice for 6 months before deciding if the program works for you. Clearly it is already working wonders for me!

Read the book The Brain That Changes Itself by Dr Norman Doidge. You will not be disappointed.

A brief hiatus

thedaintypeach

There are a lot of things going on in my life right now. Great things! I want to let everyone know that I am not just forgetting about you and the blog. With everything that’s been going on, including moving to another state….there really hasn’t been any time to devote to blogging.

I will also be staying in an apartment for a month or two once in San Fran without access to my usual blogging computer, Photoshop, etc. All I will have is the iPad. I may try to do some blogging from there, but I will have to see how things go. So if I do end up going the iPad route, my banners and photographs may not be as extravagant as you are used to. Hopefully this lovely picture of jellyfish will hold you over until then :)

Anyways, I really do have tons of things I want to share. Unfortunately it will have to wait until there is adequate time to sit down and blog about it all. I really can’t wait to fill you all in!

The next time I blog, it will be from San Francisco!

Until then,

Alane

Humwell and Twinkie learn to walk

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Humwell and Twinkie have been learning to be well-behaved little dogs. Most of the time they are great, but if you have ever knocked on our front door and heard their non-stop barking and seen their excited jumping, you know there is much room for improvement.

Consistency, Previously learned behaviors, and the real underlying issue

My second two years of college, Humwell and Twinkie couldn’t live with me, so they stayed with my parents. While I am very grateful for my parents in doing this, the dogs learned some bad habits, and were even encouraged into these habits while they were there. They revert back to these unwanted behaviors every time they are in that environment.

Right now the biggest issue—the one that underlies almost all their bad habits—is stress and excitement. Humwell and Twinkie get so overly excited that it is difficult for them to learn and focus.

When we go on walks, the dogs are learning to be more calm so they can focus on their training tasks at hand, such as making eye contact with me and walking at whatever pace I set. They are also learning that they are allowed to sniff all the smells they want…but they have to make eye contact with me first, sit, lay down, and then they are allowed to do their sniffing.

Training really pays off!

After only a few training sessions, both Humwell and Twinkie made tremendous improvements in walking on a leash without pulling. Nowadays—about 6 weeks after training began—we can go on a walk without pulling! It’s so adorable to see the dogs constantly checking to make sure we are going the same pace. We have our bad days, but most of the time I just keep seeing improvements, and the dogs are getting more and more relaxed.

On our bad days, the smells of the neighborhood really trump even the tastiest of treats. On these occasions they test my skills in patience and persistence :)

Future Goals

Another area I plan to work on with them is to not get overly excited, bark, and go nuts when people come to the door. A lot of improvement was made by conditioning the dogs to not bark or go crazy when I rang the doorbell or knocked. The dogs know not to bark, and that they get treats when quiet. The problem is that my husband and I just honestly haven’t put forth the effort to truly squelch this nasty little habit. I have a great plan for getting them to calm down, it just requires time, effort, and possibly a friend to come over and help us (which is something I can’t really do at the present time). What I would like to try, is getting a friend to come to the door. The dogs will go crazy, but this friend will give the dogs no reward or attention at all—not even looking at them—until they are completely calmed down and even bored. Then they will get treats and attention. I just know that this will work for Humwell and Twinkie. I even feel confident that they would get it almost instantly. It’s just hard right now because I can’t have anyone coming into the house without making me sick.

Ideally I like to train the dogs 3-4 times a day each…but there are many days where even one training session is too overwhelming for me. Although it’s all about consistency….it’s hard for me to train them every single day if I am not feeling well.

Despite these inconsistencies…Humwell and Twinkie are incredibly smart, and are becoming well mannered little ones. They are embarrassing me less and less when we go for walks, and making me super proud when we are working well together.

Moving To San Francisco

thedaintypeach

The dainty peach is moving on to a new chapter in life. To San Francisco! My husband Joel got an amazing job offer there and he starts in only a few weeks—on November 14th. We have been making arrangements, cleaning out our cupboards and donating all the stuff we don’t want or need.

It’s actually been really good cleaning things out, forcing us to throw out (recycle, give away, or donate) all the junk we never use anyways. Why did I still have all those old CDs from high school? Or all those old socks that I don’t even wear? The point is that they are gone now.

On to exciting things about San Francisco (there will be a LOT more than I list, but for now I’ll just stick to the  activities I can currently partake in or benefit from).

  • Better air quality.
  • More sunshine.
  • More food stores with options like gluten free, sustainable, organic, grass fed, and specialty items.
  • Potentially great doctors, dentists, products and services that only a large city has to offer.
  • Meet ups and park areas designated for small dogs only. Humwell and Twinkie once had a terrible experience at a dog park that still haunts me, where a huge 70+ lb dog basically attacked them. They haven’t been able to enjoy a dog park since…so the small dog meetups and parks will be incredible.
  • I can’t go to stores…but I can’t leave out great shopping. At least my husband has a chance for fashionable, well-fitting clothes!

One thing I’m not totally convinced about is where Humwell and Twinkie will go to the bathroom. I mean, I realize I will be picking up their poop (already have to do that if it’s not just in our backyard), but where to they pee? On a sidewalk? I’ve never understood this aspect of city living. I’m sure we will figure it out. San Francisco isn’t just concrete as far as the eye can see, like some cities I’ve visited.

The company my husband was hired at is setting us up in an apartment for our first two months there. I’m a little worried about the conditions (carpeting, toxic cleaning solutions, fresh paint, etc.), but I am looking forward to getting the information and finding out what things will be like. We also ordered a top of the line air purifier—an AllerAir 6000 VoCarb in black—that should be arriving shortly. I’m hoping that it will make any problems with the housing liveable. Also, it’s not like I live in a pristine, toxin free environment as it is…so while things could definitely be worse, it’s not as if I don’t already live in an imperfect building.